Patients with hard-to-heal ulcers have long been considered a neglected patient population. Many are treated without diagnosis, and so receive suboptimal ulcer care. Shortcomings in follow-up and continuity of care have crucial implications for these patients, who are older, fragile, and often with co-morbidities.
One focus of RiksSår is to guarantee these patients a swift and adequate diagnosis, treatment strategies accordingly and continuity of care until ulcer healing.
The Association for Patients and Relatives (PASS)
In 2005 the association for patients with hard-to-heal leg, foot and pressure ulcers and their relatives was established. The patient representatives are members of RiksSår’s steering group and they take active part in the registry’s educational programmes.
On RiksSår’s home page you can find information about PASS and also view some videos, which illustrate the daily life of a patient with a painful leg ulcer https://www.youtube.com/watch?v=98GT0hnqqO0&t=1s